So Sarah and I recently had the joy of learning about what happens when little Avery and Sean turn 3.
No more EI no more unlimited amount of therapy they are "suppose" to be all better by now according to the state. It is hard because our little ones need the therapy we have not been going to therapy all of this time just to say we are down for now until they turn 5. Why would we want them to become more delayed and if we stop now that is what will happen.
The state offers a program for 3 and 4 year olds but it really only works well if one parent doesn't work. Here in IL they offer 2 hours of preschool like settings four days a week. They offer a bus service but I know I am not comfortable with Sean going on a bus by himself at 3 years old.
My official meeting is tonight so tonight is the BIG night but I just don't think there program will work for us I work 45 hours a week already and DH works 40 hours so what do we do.
More to come later........
Well I am back and happy to report I feel better than I did before I went. They gave me a few options and we have lots to think about. If he goes to there school it would 2.5 hours every day and he would get therapy during that time but they are trying to help me getting therapy in the district our preschool will be in then? We are all not sure how it will work but since the preschool is private and has elementary grades it qualifies under the new rules so fx.
Not sure what we will decide but we have to do what works for us and is best for Sean. Lots to think about.
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This blog is dedicated to help raise pediatric stroke awareness. All three of us have a child who suffered a stroke and we found each other and have helped each other in ways we hope to help anyone going through what we have been through. Our team Big Steps for Baby Strokes is going to make a difference and raise awareness.
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Here's my new blog link. Old one won't work- blog safety concerns: http://splendidmayhem.blogspot.com
You know, my friend and I were just talking about the fact that they discontinue services at 3. She's struggling to find the next program her son will qualify for. What an ordeal. I'm sorry you're having to navigate all of this, but I really admire your dedication to that sweet little boy! Great mom! By the way, have you ever visited the Urech quad's site? Here's the link: http://urechquads.blogspot.com/ One of her quads, JuJu, suffered a stroke after birth (as a preemie). I know it's a different scenario, but I'm sure there are parallels too. She's making great strides. Her mom's super (like you)! Check it out.
I am new to your blog, when my daughter was born she was diagnosed with an in utero stroke. There was nothing out in cyber space at the time that would lead me to believe there could be a positive outcome. So I would first like to thank you and the rest of the bloggers that have began to shed some light on childhood strokes. With my little one we have been blessed, she shows no signs of the stroke at 3 1/2. Any way I was wondering if you had looked into any of your local church preschools? Reagan had similar problems playing with children, but I believed it had to do with being an only child, so her play mates were adults. Anyway our church has an all day child care service, but are also a preschool. They do curriculum 3 days a week. It has made a big difference in her behavior. The environment is that of love and patients. Just an idea.
just happened onto your blog. what is pediatric stroke? never heard of it?
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